Thursday, April 1, 2010

Ok, I need your help...

I am hoping you can take a few minutes of your time to help be a voice for people living with cystic fibrosis. Below is the link to information I received from the CF Foundation that I wanted to pass on. While there are several things about the new health care reform bill that will greatly benefit those with CF, a critical part has been left out of the bill where clinical trials are concerned. We need you to write your representatives by visiting the link below and ask them to pass the clinical trials bill in 2010. This bill would ensure that people would not have to give up their primary health benefits if they choose to participate in a clinical trial.
The foundation has made everything so easy for you. The letter is already written. You just enter your info at the end and it automatically sends it to your state representatives. If you live in OK, it will go to Mary Fallin, Tom Coburn and Jim Inhofe. You can also attach a picture with a caption at the end so I am posting a picture of Hayden below and you can use it if you like. Hopefully you can just right-click and save it to your computer. I love the idea of the three of them seeing Hayden's picture over and over!
There is also a place you can check mark to become an advocate for CF and receive further emails like this one. I really would appreciate your taking the time to do this on behalf of Hayden. It should only take a few minutes. There will probably be clinical trials she can participate in in a couple of years, so it is very important that this passes.
Thank you so much.

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